“What the mind doesn’t know, the eye doesn’t see.”
What is Endometriosis?
‘What is Endometriosis?’ is a common refrain that those with endometriosis here over and over again (which is, of course, why we are #endomarching). So, to help you get up to speed on just what endometriosis is, listed below are some excellent educational resources and support groups, many of which have been provided by our fellow EndoMarch teammates.
Endometriosis Publications from Drs. Nezhat
With permission from Dr. Camran Nezhat and nezhat.org
- Drs. Nezhat’s Surgery Textbook
- Peer-reviewed Articles, Part I
- Peer-reviewed Articles, Part II
- Book Chapters
- Letters to the Editor
- Video Presentations
Endometriosis Fact Sheets
- EndoMarch Endometriosis Fact Sheet can be found here.
- European Society for Human Reproduction and Embryology (ESHRE) Updated Guideline On Endometriosis Management
- The NIH-supported Women’s Health website also has the following fact sheet.
Women With Endometriosis Explain Their Pain
Check out this meticulously curated blog by one of our amazing volunteers that doesn’t mince words about what it really feels like to have endometriosis. After reading this, we’re sure you’ll walk away wondering how it could be that such a horrific disease is so rarely mentioned in mainstream news. “What the mind doesn’t know, the eye doesn’t see.” This is why we are #endomarching.
Support & Research Groups
We’d like to express our gratitude to the dozens of support groups that are providing not only compassionate support, but exceptional educational resources for those with endometriosis and other disabling disorders.
Those listed below have been brought to our attention by the worldwide team of EndoMarch volunteers as some of their favorite. Please feel free to email us at firstname.lastname@example.org, if you would like to suggest other support groups to be listed here.
National & International Research & Support Organizations (alphabetical)
Support Groups (US-based, alphabetical)
Endo Doesn’t Define You
Endo Sisters 2014 (Support & Pen Pal Program)
Endo Sisters Healing Together
Endo Support Groups’ Community Forum
Endometriosis Women of California
Her Yellow Ribbon
My Endometriosis Story
Powerful Endo Women
Sister Girl Foundation, Inc.
Thoracic Endometriosis/LUNG Endo Group
Regional Groups – Endometriosis
Endo Warriors, Contact Jessica (Jez) Root at JezEWDenver@gmail.com
Endo Sisters Healing Together
Endo Twin Cities – Endometriosis Support
Endo Warriors, Contact Lauren Tait at email@example.com
Endo Warriors – NYC, Contact Jill Fuersich at firstname.lastname@example.org
Endo Warriors – Westchester, Contact Casey Berna at email@example.com
EndoMarch Team Oregon
Endo Warriors, Contact Valerie Conners at firstname.lastname@example.org
(New York, New Jersey, Connecticut)
Endo Warriors – The Netherlands, Contact Mandy_Smeets@live.nl
Asociacion Peruana de Endometriosis, APEndo
Asociacion Estatal Afectados de Endometriosis (ADAEC)
For young women and girls