Worldwide Endometriosis March® (EndoMarch®) was founded as a grassroots global movement and urgent call to action to improve the quality of medical care for millions of women and girls who suffer from endometriosis, an incurable, whole-body chronic disease that can potentially cause system-wide crippling pain, organ damage, infertility, and other severe medical consequences if left inadequately treated. As stated in our original goals announced in early 2013, the fact that, in the 21st Century, endometriosis sufferers are still going undiagnosed for up to 10 years (or longer) and are still receiving grossly inadequate or inappropriate medical care constitutes a national public health crisis
Our flagship awareness campaign is the Worldwide EndoMarch & World Endometriosis Day® annual event that take place in dozens of countries around the world on the last Saturday in March, as a way to unite the endometriosis community and create a collective platform so that the voices of the estimated 200 million endometriosis sufferers around the world can be heard. Other programs that occur throughout the year include our Sponsor a School initiative (endometriosis education in schools), Advocacy Day, and the National Endometriosis Education Ambassador position, to train the next generation of endometriosis advocates.
EMPOWER – EDUCATE – EFFECT CHANGE
To help end this urgent yet still largely ignored plight of endometriosis patients, we recognized that awareness and educational outreach on multiple fronts would be needed in order to systematically address the unmet needs of those suffering from this potentially devastating, invisible disease. We therefore established the following three overarching goals:
• To unite women and their supporters to take a stand against endometriosis;
• To raise awareness about endometriosis and its effects on women and girls;
• To educate and train members of the medical community, in order to promote early detection and improved treatment for those suffering with endometriosis;
3) EFFECT CHANGE
• Work with our government and congress to allocate more federally-funded spending for endometriosis research;
• Implement health screenings for endometriosis among girls and young women in public schools;
• Find biomarkers & develop a non-invasive diagnostic test;
• Create an advanced surgical fellowship program so that we can train more future endometriosis specialists who have the advanced surgical skills needed to completely & safely eradicate endometriosis wherever it exists in the body;
• Fast-track reforms to current disease management guidelines (standards of care) and develop genomic-based, proteomic-based personalized treatment options, to address the current crisis, so that millions of women and girls can finally receive the timely diagnoses and quality medical care that they deserve.
• Fast-track the search for a cure.
Every year on last Saturday of the March ( Worldwide Endometriosis Day®), Worldwide EndoMarch calls to action and unites the world to bring awareness for endometriosis.
Worldwide Endometriosis March Founders set the following global goals:
Empowerment * Education * Care
• Unite and provided resources for women and their supporters to battle this disease
• Raise awareness about endometriosis and its effects on women and girls
• Educate and train members of the medical community to promote early detection and improved treatment
• Identify potential biomarkers so that non-invasive diagnostic tests can be developed
• Collaborate with other scientists to help fast-track toward personalized medicine, with more effective, individualized treatment options and to ultimately find a cure
• Improve early health screenings for endometriosis among girls and young women in public schools
• Foster our government and congress to allocate funding for endometriosis
To join the impact of EndoMarch in your community, and to find a March near you click our Event Info page here.
ENDOMARCH Outreach and Advocacy
In addition to the founders’ goals, we seek change in the following four (4) sectors:
1) Government-funded Health Organizations
We believe that it is crucial to work more closely with US governmental institutions that oversee health research and awareness campaigns, including the National Institutes of Health (NIH), Centers for Disease Control (CDC), and the Office of the Surgeon General (all under the Department of Health and Human Services). By appealing directly to these and other related agencies, it is our hope that endometriosis can be made a priority and a new area of focus in these agencies over the coming years. This is especially imperative, given the fact that the NIH spends less than $1.00 on endometriosis per capita. We also believe that the separate group within the NIH which is dedicated exclusively to Endometriosis, Fibroids, and Chronic Pelvic Pain in Women, be made much more visible to the public. Diabetes and other conditions have their own NIH-funded national television and print awareness campaigns; we believe the millions of women and girls suffering from endometriosis deserve the same. Our international team of volunteers will also engage in letter-writing campaigns to elected officials, as well as to international health organizations such as the World Health Organization.
2) Department of Education, Education in Public Schools
We are reaching out to the Department of Education, as well as to state-level departments, schools and universities directly so that together we can launch nationwide educational campaigns and health screening in public schools and universities. By bringing endometriosis education to public schools and universities, school nurses, teachers, parents, counselors, and administrators will be better equipped to recognize and screen for endometriosis. Public schools already screen for a variety of health conditions, such as scoliosis, asthma, autism, obesity, and hearing and vision impairments. With pre-teen and teenage girls with endometriosis facing unacceptably lengthy diagnostic delays, we believe they especially deserve the same level of consideration as those suffering from asthma, autism and other serious childhood ailments.
3) Medical and Nursing School Educational Institutes
Even after numerous visits to pediatricians, primary care physicians, gynecologists, school nurses, and emergency room practitioners, millions of women and girls with endometriosis (and adenomyosis) are still going undiagnosed and are receiving grossly inadequate care. This lack of awareness constitutes a national public health crisis. Therefore, it is our goal to collaborate with our nation’s medical and nursing schools to launch endometriosis educational initiatives so that future physicians, nurses, nurse practitioners, and physician assistants can more readily recognize the symptoms of endometriosis and provide the appropriate care. We will also be reaching out to medical researchers to help us find cures and develop noninvasive tests for disorders that have been devastating millions of lives for thousands of years.
4) Public Education
By organizing this worldwide awareness campaign in an effort to bring the plight of those with endometriosis to the attention of the media and the general public. Media coverage about endometriosis, for example, is woefully inadequate. There have been many hour-long specials about obesity and addiction featured on major television networks, or on the cover of national news magazines. However, we are still waiting for the same consideration to be given to the millions of people who have had their lives torn apart by one of the most painful and potentially crippling disorders ever catalogued in the history of humankind. We will also be reaching out all organization to consider supporting education programs and research so that a preventative method and noninvasive screening tests can be developed and the cure can be found for Endometriosis.
Please note that our nonprofit is still listed under our former name, ‘Million Women March For Endometriosis.’ However, we applied for a name change, which will soon be reflected in the official IRS system. You can see a copy of our name change application here.