ENDOMARCH DAY 2026
ENDOMARCH DAY 2026 – SATURDAY, MARCH 28, 2026
GLOBAL ENDOMETRIOSIS MARCH TO END ENDOMETRIOSIS HEALTHCARE INEQUITIES
Join tens of thousands of Endometriosis Resistance Fighters, Survivors, and their families from around the world for the 12th Annual Worldwide EndoMarch Virtual March, being held online on Saturday, March 28, 2026, as we unite together for #EndoMarch2026, to demand an end to the decades-long Endometriosis healthcare inequities that are causing so much loss of life and other severe harm to Endometriosis Survivors on a global scale.
ENDOMARCH 2025 CALL TO ACTION – CHANGE THE MED SCHOOL CURRICULA
In last year's Call to Action, we focused on outreach to medical schools and medical societies from all disciplines, to help expedite the global campaign to change the outdated and discriminatory medical school curricula around the world — one of the root causes of perpetuating harmful endometriosis & adenomyosis myths, year after bloody year.
Participants were also able to interact with leading endometriosis surgeons and advocates from around the world, as well as learn about the incredible advocacy work of Endometriosis organizations from 70+ countries, who fought for urgently-needed health care policy reforms and standards of care guidelines that reflected patient-identified needs.
TAG US ONLINE
On EndoMarch Day, Saturday, March 29, 2025, participants tagged us on Instagram (@wwendomarch) or on TikTok (@worldwide_endomarch) to help share their views and join forces with hundreds of thousands of advocates around the world.
HASHTAGS
#EndoMarch2025 #Endometriosis #EndoEqualityNow #EndEndoInequality #EndoJusticeNow #EndometriosisReformsNow #ChangeTheGuidelines #ChangeTheCurricula #UpdateMedSchoolEndoEdu #ForwardWeGo
ABOUT ENDOMETRIOSIS: A WHOLE-BODY, SEVERE CHRONIC CONDITION
Endometriosis is an incurable, whole-body (systemic) chronic, inflammatory disease that can potentially cause incapacitating pain anywhere in the body and at any time of the month — along with potential multi-organ failure, infertility, and other severe and sometimes life-threatening medical consequences if inadequately treated.
Described as one of the top ten most painful conditions on record, Endometriosis is also potentially one of the most destructive chronic diseases known to medicine, reigning as the leading cause of school absences in girls and a leading cause of hospitalization and severe disability worldwide in women, girls, and persons assigned female at birth. An unmeasured number of cis men, intersex, transgender, and non-binary individuals also suffer from endometriosis and continue to face especially onerous barriers to proper care.
Contrary to popular belief, Endometriosis is not a reproductive tract disease or "just a bad period" — it can potentially cause severe chronic symptoms throughout the entire body, including system-wide crippling pain, severe chronic fatigue, immune and endocrinologic dysfunction, and damage to multiple organs and tissues including the bowel, bladder, ureters, diaphragm, muscles, musculoskeletal structures, nerves, lungs, and liver.
UNLAWFUL DISCRIMINATION & BARRIERS TO CARE CAUSING PREVENTABLE HARM
Serious barriers to adequate care and a broken health care system contribute to significantly worse health outcomes for people with Endometriosis, including multiple failed surgeries, multiple failed medications causing more damage and severe side effects, and even so-called "never events" of actual wrong-organ surgeries (such as removing perfectly healthy organs while leaving the actual diseased tissue behind).
Many of these preventable adverse outcomes are the result of decades-long dismissive, discriminatory treatment which leaves the vast majority of patients facing years of outright discriminatory denials or insurmountable barriers to specialist, gold-standard care because Endometriosis continues to be dismissed as "normal" or "just a bad period" — when its potential for body-wide destruction also includes increased risk of many life-threatening comorbidities, including an almost 4 to 10-fold increased chance of developing certain cancers (it is associated with approximately 10% of ovarian cancers, the most deadly form of gynecologic cancer in the U.S.).
Life-threatening kidney failure, life-threatening chronic lung collapse, increased risk of life-threatening cardiovascular disease, increased risk of early-onset neurodegenerative disease, crippling degenerative bone disease, severe tooth decay, loss of many organs and fertility, and even preventable premature mortality are all part of the potential life sentence that is endometriosis.
African American Endometriosis sufferers experience even worse outcomes than White Endometriosis patients, including higher mortality rates of certain Endometriosis-associated ovarian cancers and significantly longer diagnostic delays. Nonbinary, intersex, and Endo siblings from LGBTQIA+ communities also experience increased discrimination, including outright denials of care, all of which lead to significantly worse outcomes as well.
The tragic part: most of these severe, adverse health outcomes could be preventable if Endometriosis patients received the recognized standards of care at symptom onset, rather than being left writhing in excruciating pain for up to 7–11 years while the disease rampages unchecked throughout the entire body. A nationwide shortage of qualified Endometriosis specialists, along with questionable repeat insurance denials for medically necessary care, contributes to this ever-growing global public health crisis.
Considering that Endometriosis is not a rare condition at all — its prevalence is nearly on par with diabetes (in the U.S.), with an estimated 15–20% of women, girls, and persons assigned female at birth affected, which works out to an estimated 400 million worldwide (Nezhat et al) — one has to question why such a prevalent and potentially crippling chronic disease is not receiving the attention it deserves in medical school training, NIH funding, public health awareness campaigns, and health insurance coverage.
The Endometriosis Community demands immediate action so that the next generation has a fair chance at living a healthy life, instead of losing decades of their lives and livelihoods to preventable disease progression.
ABOUT THE GLOBAL ENDOMARCH MOVEMENT
Worldwide Endometriosis March® (Worldwide EndoMarch®) ignited a global endometriosis movement to help fight for urgently-needed Endometriosis Health Care Rights and Reforms. The EndoMarch Movement is the largest internationally-coordinated awareness campaign in the world, founded by Dr. Camran Nezhat, Dr. Farr Nezhat, Dr. Ceana Nezhat, Dr. Azadeh Nezhat, and Barbara Page. They are also the proud original founders of the "No Pharma in Endo Advocacy" movement, which started in 2013 when Worldwide EndoMarch became one of the earliest US-based Endometriosis Advocacy nonprofits to prohibit funding from pharmaceutical companies or any other companies that would represent a conflict of interest.
FOOTNOTES
¹ Some EndoMarch Teams hold their live events on a different date.
² Prevalence rates are unknown for men, boys, and persons assigned male at birth, as well as intersex, nonbinary, and transgender individuals. Work is ongoing to help close these appalling knowledge gaps by providing research grants to support epidemiological studies focused on these specific healthcare inequities and neglected fields.
